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US Government - Department of Health and Human Services - National Institutes of Health (NIH) - Office of Rare Diseases
Office of Rare Diseases
Address: 31 Center Drive
  MSC 2084
  Bethesda, MD  20892
Phone: (301) 402-4336
Fax: (301) 480-9655
Website: rarediseases.info.nih.gov
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